WHAT IS HSB

Hemophilia Society of Bangladesh (HSB) formed on 18 march 1994. At first Six Hemophilic patients and their parents arrange a meeting in nation Shahid Minar at Dhaka. In that meeting they decided to formed an Organization so that all Hemophiliacs in Bangladesh can take proper treatment from it. That was the beginning. After that the organization was registered in Social Welfare Department Of Bangladesh Government in the year 1995 and also achieved membership from World Federation Of Hemophilia (WFH) in 1996.

HEMOPHILIA AND HSB

Because of poor diagnostic facilities, more than 90% Hemophiliacs are never diagnosed and die without treatment and also those who are diagnosed are being under treated as the treatment cost is very high. Most of the patients cannot effort the cost. There are no available treatment facilities in any Government Hospital till now and also HSB could not yet establish a full-fledged Hemophilia care center due to lack of fund. Hemophilia care is not confined to just infusion of the deficient factor at the time of active bleeding. It involves prevention, education, alternate treatments and effective follow up to avoid complications. HSB spreads their message through different workshop and seminar. It provide Technical and non-technical information on all aspects of Hemophilia care.

LEGAL STATUS OF THE ORGANIZATION

HSB is registered as a charitable organization of Bangladesh Government. Registration No : DHA-03359 HSB is also the national member organization of the World Federation Of Hemophilia (WFH) which is officially related to WHO.

OUR MISSION

To provide information, education, training awareness and advice for proper care to people with hemophilia and related bleeding disorders and to advocate for greater access to treatment options.

OUR VISION

To take care all people with hemophilia and related bleeding disorders to alleviate pain & suffering and to be disability-free.